Hear from the KALYDECO community
Carter
age 21,
G551D
Carter stays diligent about taking his KALYDECO
Carter stays diligent about taking his KALYDECO
I first heard about KALYDECO from my dad. During one of my appointments, he asked my doctor if I have the G551D mutation.
Carter stays diligent about taking his KALYDECO
I first heard about KALYDECO from my dad. During one of my appointments, he asked my doctor if I have the G551D mutation. My doctor checked and, sure enough, I did. I immediately got excited because of everything my doctor and my dad told me about KALYDECO. My doctor told me about potential side effects and, in the end, my dad and I felt comfortable moving forward with KALYDECO.
When I began taking KALYDECO, my mom helped me get organized and made sure I took it as my doctor had instructed. These days, I stay diligent about my routine and make sure I carve out time for my treatments.
Life with CF can sometimes be challenging, but I stay positive thanks to my relationships and knowing that my friends and family are always there for me.
View Important Safety Information and full Prescribing Information, including Patient Information, for KALYDECO.
Stacy
age 33,
G551D
Stacy is passionate about her music and her health
Stacy is passionate about her music and her health
Music has always been a passion of mine, and I enjoy sharing music with others; it comes naturally to me.
Stacy is passionate about her music and her health
Music has always been a passion of mine, and I enjoy sharing music with others; it comes naturally to me. I’ve known I wanted to be a music teacher since I was 9 years old.
I was diagnosed with cystic fibrosis when I was 6 years old; a genetic test showed I had the G551D mutation. I had to make adjustments to my diet and some of my activities, but I’ve tried to never let CF hold me back.
Managing CF can be complex, so it’s really important to have a close relationship with your doctor. During one of my regular appointments with my CF healthcare team, I heard about KALYDECO. I was very interested and started asking my doctor a lot of questions.
My doctor felt it would be a good choice for me, because I have the G551D mutation. Before taking KALYDECO, my doctor and I discussed the possible side effects of KALYDECO, including that KALYDECO can cause serious side effects.
It’s always been important to me to find ways to follow my passion for playing music, while making my health a priority. And that includes taking KALYDECO, along with my other prescribed CF treatments.
Stacy was sponsored by Vertex Pharmaceuticals Incorporated to share her story.
View Important Safety Information and full Prescribing Information, including Patient Information, for KALYDECO.
Makson
age 7,
R117H
For Kristen and Makson, sticking to a routine works
For Kristen and Makson, sticking to a routine works
My son Makson is 7 years old. He loves baseball, karate, fishing, and just being outside.
For Kristen and Makson, sticking to a routine works
My son Makson is 7 years old. He loves baseball, karate, fishing, and just being outside. He also has CF with an R117H mutation and takes KALYDECO.
Makson started KALYDECO when he was 6 years old. I had heard about KALYDECO from other parents of kids with CF, so I decided to talk to Makson's doctor about it. After going through the benefits and risks, we agreed to start.
Since then, KALYDECO has become part of our everyday routine. Maintaining a routine for my children is very important to me, whether it’s homework, eating, or getting outside—so we were able to fit it in pretty smoothly with the rest of Makson’s treatments. He usually takes KALYDECO tablets with peanut butter, his favorite fat-containing food. He’d eat peanut butter with every meal if he could. And now that he’s been taking it for a while, he’ll even remind me, “Mom, it’s time to take my KALYDECO!”
View Important Safety Information and full Prescribing Information, including Patient Information, for KALYDECO.
Cooper
age 4,
L206W
Amanda teaches Cooper the importance of taking his medicines
Amanda teaches Cooper the importance of taking his medicines
Cooper loves doing tae kwon do. He’s one of the youngest and smallest in his class, but he always gets out and does his best.
Amanda teaches Cooper the importance of taking his medicines
Cooper loves doing tae kwon do. He’s one of the youngest and smallest in his class, but he always gets out and does his best. His care team has mentioned that staying active has helped him stay healthy as he continues to grow!
When KALYDECO was approved for Cooper’s gene mutation, we talked to his doctor about the benefits and risks of KALYDECO. We were excited to get him started and believed it would benefit him in the long run. We noticed improvements in sweat chloride levels within the first few weeks, even during the hot Texas summer!
We talk to Cooper every day about the importance of taking his medications and the long-term impact CF can have on his body. Cooper takes both his morning and evening doses with chocolate hazelnut spread, his favorite fat-containing food. Today, taking KALYDECO has become part of our regular routine.
Cooper’s mom, Amanda
View Important Safety Information and full Prescribing Information, including Patient Information, for KALYDECO.
Lily
age 11,
G551D
Vertex GPS™: Guidance & Patient Support is there for Lily
Vertex GPS™: Guidance & Patient Support is there for Lily
Lily’s doctors decided KALYDECO would be the best option for her, and we were able to start her on it.
Vertex GPS™: Guidance & Patient Support is there for Lily
Lily’s doctors decided KALYDECO would be the best option for her, and we were able to start her on it. Within a week, we were able to notice changes in Lily. She is diligent about her treatment and sticks to her routine. Lily learned how to take pills in order to take KALYDECO. We’re grateful for KALYDECO.
Vertex GPS™: Guidance & Patient Support has been beyond helpful during our KALYDECO journey. They are always there to help when we have questions about product or insurance support. It makes me feel good knowing they are here to help. Vertex seems to truly care, and that’s a great feeling.
Lily’s mom, Carissa
View Important Safety Information and full Prescribing Information, including Patient Information, for KALYDECO.
Kaitlin
age 27,
G551D
Kaitlin finds strength in her support system
Kaitlin finds strength in her support system
I have 2 dogs, and I love spending time outdoors with them. I also enjoy kayaking! Being active is a huge part of my life with CF.
Kaitlin finds strength in her support system
I have 2 dogs, and I love spending time outdoors with them. I also enjoy kayaking! Being active is a huge part of my life with CF. My favorite kinds of exercise are running and hot yoga. They help my balance, strength, and mindset.
When I started taking KALYDECO, I noticed a change in my health. My weight increased and my pulmonary function tests improved. Seeing how KALYDECO has impacted my health is my motivation to continue taking it and to further participate in the CF community. It’s so exciting and rewarding to be able to help spread awareness about CF!
I have a pretty amazing support system. My family and friends are nothing short of encouraging. I have been blessed to find a wonderful husband, and he and his family have been so supportive. They all push me to be my best!
KALYDECO fits into my daily routine. I work the night shift as a nurse, and I’ve found that setting an alarm on my phone really helps me step away from whatever I am doing to just grab a snack and take my medication. My favorite thing to take it with is a big spoonful of peanut butter and some nuts, cheese, and dried fruit. I’m so grateful for KALYDECO!
View Important Safety Information and full Prescribing Information, including Patient Information, for KALYDECO.
Mark
S945L
Mark strives to stay strong and active
Mark strives to stay strong and active
I have enjoyed most of my life with my wife. I thrive on adventure. I enjoy being outdoors and being active. Life with CF has had its share of challenges.
Mark strives to stay strong and active
I have enjoyed most of my life with my wife. I thrive on adventure. I enjoy being outdoors and being active. Life with CF has had its share of challenges. I have a lot to be thankful for—physicians, nurses, researchers, and many other dedicated professionals who have supported and monitored my health and well-being.
I view myself as a compliant patient. I am a reliable participant, a collaborator prepared for each doctor appointment with information, data, and questions to help manage my health. I always strive to stay strong, and I try to live my life as fully as I can.
Staying healthy isn’t always easy, but taking KALYDECO helps me know that I am doing what I can for my health. I am extremely grateful that KALYDECO is here for me.
View Important Safety Information and full Prescribing Information, including Patient Information, for KALYDECO.
All content
Carter
age 21,
G551D
Carter stays diligent about taking his KALYDECO
I first heard about KALYDECO from my dad. During one of my appointments, he asked my doctor if I have the G551D mutation.
Stacy
age 33,
G551D
Stacy is passionate about her music and her health
Music has always been a passion of mine, and I enjoy sharing music with others; it comes naturally to me.
Makson
age 7,
R117H
For Kristen and Makson, sticking to a routine works
My son Makson is 7 years old. He loves baseball, karate, fishing, and just being outside.
Cooper
age 4,
L206W
Amanda teaches Cooper the importance of taking his medicines
Cooper loves doing tae kwon do. He’s one of the youngest and smallest in his class, but he always gets out and does his best.
Lily
age 11,
G551D
Vertex GPS™: Guidance & Patient Support is there for Lily
Lily’s doctors decided KALYDECO would be the best option for her, and we were able to start her on it.
Kaitlin
age 27,
G551D
Kaitlin finds strength in her support system
I have 2 dogs, and I love spending time outdoors with them. I also enjoy kayaking! Being active is a huge part of my life with CF.
Mark
S945L
Mark strives to stay strong and active
I have enjoyed most of my life with my wife. I thrive on adventure. I enjoy being outdoors and being active. Life with CF has had its share of challenges.