Share Your Story With the KALYDECO^® Community

Music has always been a passion of mine, and I enjoy sharing music with others; it comes naturally to me. I’ve known I wanted to be a music teacher since I was 9 years old.

I was diagnosed with cystic fibrosis when I was 6 years old; a genetic test showed I had the G551D mutation. I had to make adjustments to my diet and some of my activities, but I’ve tried to never let CF hold me back.

Managing CF can be complex, so it’s really important to have a close relationship with your doctor. During one of my regular appointments with my CF healthcare team, I heard about KALYDECO. I was very interested and started asking my doctor a lot of questions.

My doctor felt it would be a good choice for me, because I have the G551D mutation. Before taking KALYDECO, my doctor and I discussed the possible side effects of KALYDECO, including that KALYDECO can cause serious side effects.

It’s always been important to me to find ways to follow my passion for playing music, while making my health a priority. And that includes taking KALYDECO, along with my other prescribed CF treatments.

My son Makson is 7 years old. He loves baseball, karate, fishing, and just being outside. He also has CF with an R117H mutation and takes KALYDECO.

Makson started KALYDECO when he was 6 years old. I had heard about KALYDECO from other parents of kids with CF, so I decided to talk to Makson's doctor about it. After going through the benefits and risks, we agreed to start.

Since then, KALYDECO has become part of our everyday routine. Maintaining a routine for my children is very important to me, whether it’s homework, eating, or getting outside—so we were able to fit it in pretty smoothly with the rest of Makson’s treatments. He usually takes KALYDECO tablets with peanut butter, his favorite fat-containing food. He’d eat peanut butter with every meal if he could. And now that he’s been taking it for a while, he’ll even remind me, “Mom, it’s time to take my KALYDECO!”